In compliance with Organic Law Data Protection, we inform you that your data will be part of the file RARE COMMONS, responsibility of Hospital Sant Joan de Déu de Barcelona, and that the purpose of its treatment will be managing the Rare Commons portal, of its users and participants involved in the development of research related to rare diseases and as to the description of its natural history by providing personal information associated with a family, patient or themselves. And you may exercise your rights of access, rectification, cancellation and opposition by instance and attaching photocopy of ID or document ID to the following address: Paseo de San Juan de Dios # 2 08950 Esplugues de Llobregat (Barcelona-Spain) or through
[email protected] email.
