In compliance with the organic law of data protection, we inform you that your data will form part of the RARE COMMONS archive, which is the responsibility of the Hospital Sant Joan de Déu of Barcelona, and that the purpose of the data handling will be the management of the portal Rare Commons, of its users and participants involved in the development of the research related to rare diseases in respect to the description of their natural history by means of providing personal data relating to a family, a patient or themselves. And you may exercise rights of access, rectification, cancellation and opposition by request attaching a photocopy of your National ID card or identifying document to the following address: Paseo de San Juan de Dios nº 2 08950 Esplugues de Llobregat (Barcelona-Spain) or via e-mail
[email protected]