Patient Account

Account information

This name is used to identify yourself on the platform and before your doctors, and is linked to the safety regulations on data protection for Rare Commons. For this reason, we strongly ask you to avoid using pseudonyms that can lead to confusion and distort the rigor and seriousness of the use of the platform.

Username *

Spaces are allowed; punctuation is not allowed except for periods, hyphens, apostrophes, and underscores.

E-mail address *

A valid e-mail address. All e-mails from the system will be sent to this address. The e-mail address is not made public and will only be used if you wish to receive a new password or wish to receive certain news or notifications by e-mail.

Personal data

Country *

Patient data

Patient data must be real. We reserve the right to reject those applications whose patient's name is not filled in or is not the patient's real name.

Date of birth of patient *

Month

Day

Year

I have read and accept the legal notice *

In compliance with the organic law of data protection, we inform you that your data will form part of the RARE COMMONS archive, which is the responsibility of the Hospital Sant Joan de Déu of Barcelona, and that the purpose of the data handling will be the management of the portal Rare Commons, of its users and participants involved in the development of the research related to rare diseases in respect to the description of their natural history by means of providing personal data relating to a family, a patient or themselves. And you may exercise rights of access, rectification, cancellation and opposition by request attaching a photocopy of your National ID card or identifying document to the following address: Paseo de San Juan de Dios nº 2 08950 Esplugues de Llobregat (Barcelona-Spain) or via e-mail [email protected]

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