Hospital Sant Joan de Déu
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News

  • 02/21/2015
    The Rare Disease Day was established in 2008, being primarily a European initiative which from 2009 became a worldwide commemoration. The day chosen is February the 29th because it is a "rare" day on our calendar. This is a celebration whose main objective is to make visible the problem of rare...
  • Logo Rare Commons
    02/18/2015
    El próximo 27 de febrero, tendrá lugar la Jornada de Presentación del IPER (Instituto Pediátrico de Enfermedades Raras) y de Rare Commons, dos apuestas por la mejora asistencial y científica en enfermedades raras del Hospital Sant Joan de Déu de Barcelona. Las plazas para asistir al acto son...
  • Madre con un niño con síndrome de Lowe
    02/13/2015
    The tenacity, energy and encouragement to reach a future with a better quality of life for children with Lowe syndrome , was the engine that made the end of 2012 promote biomedical research into this disease. The families of the Spanish Association of Lowe syndrome , organized a scientific meeting...
  • síndrome de CDG
    02/13/2015
    The project objective is to develop and validate scales for assessing and monitoring neurological, cognitive-behavioral and neuroimaging traits of children with CDG . In the project are collaborating more than 10 Spanish hospitals coordinated by the group of Sant Joan de Deu Hospital and it...

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