Hospital Sant Joan de Déu
Sharing to move ahead

News

  • 03/02/2015
    Orphanet is the reference website for information on rare diseases and orphan drugs, aimed at all audiences, published last February 28 its latest newsletter corresponding with the commemoration of World Rare Disease Day. Among the different topics of the news, we want to highlight: The celebration...
  • 03/01/2015
    The 28th February 2015 marks the eighth international Rare Disease Day. Orphanet Journal of Rare Diseases publishes cutting-edge review articles to provide the rare disease community with up-to-date information on specific rare diseases. Sharing this review articles Orphanet Journal of Rare...
  • 02/28/2015
    Number of medicines with new active substances continues to increase In 2014, the European Medicines Agency (EMA) recommended the highest number of orphan designated medicines for marketing authorisation in a year. Out of the 82 medicines for human use recommended in 2014, 17 are intended for the...
  • 02/21/2015
    The Rare Disease Day was established in 2008, being primarily a European initiative which from 2009 became a worldwide commemoration. The day chosen is February the 29th because it is a "rare" day on our calendar. This is a celebration whose main objective is to make visible the problem of rare...
  • Logo Rare Commons
    02/18/2015
    El próximo 27 de febrero, tendrá lugar la Jornada de Presentación del IPER (Instituto Pediátrico de Enfermedades Raras) y de Rare Commons, dos apuestas por la mejora asistencial y científica en enfermedades raras del Hospital Sant Joan de Déu de Barcelona. Las plazas para asistir al acto son...
  • Madre con un niño con síndrome de Lowe
    02/13/2015
    The tenacity, energy and encouragement to reach a future with a better quality of life for children with Lowe syndrome , was the engine that made the end of 2012 promote biomedical research into this disease. The families of the Spanish Association of Lowe syndrome , organized a scientific meeting...
  • síndrome de CDG
    02/13/2015
    The project objective is to develop and validate scales for assessing and monitoring neurological, cognitive-behavioral and neuroimaging traits of children with CDG . In the project are collaborating more than 10 Spanish hospitals coordinated by the group of Sant Joan de Deu Hospital and it...

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